Results from data sharing case studies revealed
The accessible sharing of timely, quality and appropriate research data has been identified as a key component of epidemic preparedness. Increased availability of data can enhance the global communities’ ability to effectively respond to, coordinate and manage response strategies for infectious disease outbreaks.
The GloPID-R network aims to ‘strive to make data accessible to each other and to the relevant research community as rapidly as possible, and with minimal restrictions.’ To this end, a workshop will bring together GloPID-R members and other key stakeholders to discuss recently completed case studies on data sharing on December 5, 2018 in London, United Kingdom.
Early in 2018, GloPID-R members Wellcome and the UK’s Department for International Development (DFID) funded six in-depth case studies to understand the issues and enablers related to the development and sharing of data, to identify how data shaped research responses in the context of past outbreaks, and to document and analyze practices related to data sharing in these contexts.
Members and external experts will explore the features of systems for data sharing in public health emergencies and how they can be improved to better inform preparedness and response.
The goals of this workshop are to:
- Understand and analyze data sharing practices and features of past disease outbreaks and identify common barriers and enablers to sharing.
- Understand what constituted timely data sharing in different environments and circumstances.
- Identify lessons and approaches that could overcome barriers and promote enablers of data sharing in outbreaks.
- Consider the barriers and enablers which may include political, economic, administrative, regulatory, legal, ethical or social contexts.
- Recommend strategies that actors (for example research funders, public health actors, researchers, etc.) may adopt for improving timely data sharing practices and data contributing to the response.
Some of the speakers and presenters include Gail Carson, ISARIC, University of Oxford, GloPID-R secretariat and Chair of the Data Sharing Working Group; Prof Marion Koopmans, Erasmus MC, GloPID-R Scientific Advisory Board; Rob Terry, World Health Organization (GloPID-R Observer); and Raúl Pardíñaz-Solís, International Severe Acute Respiratory and Emerging Infection Consortium (ISARIC), University of Oxford.
The case study findings and recommendations from this workshop will also inform future activities of GloPID-R members.